We have a big hearing test on Monday back in Atlanta that we are pretty nervous about. Nate is getting another ABR done. This test tells us whether or not Nate has auditory neuropathy (AN). It will not tell us how much hearing he does or does not have though. There is a very small chance that this ABR will tell us that Nate does not have AN. There have been a few cases where children with high bilirubin levels (like Nate) have found out that they in fact had auditory immaturity. Essentially when the first ABR was done back in July he was still so young and still had an elevated bilirubin. The auditory nerve just may not have developed properly yet. So... Scott and I are praying for another miracle from God for our precious baby boy. He has already blessed us so much and we are so lucky to have a healthy and happy baby. We wanted to ask our friends and family to say another prayer for our little guy. He has worked so hard through life already and we would love for his hearing to be something he doesn't have to work hard for. They also have to sedate him to do this test, which I am really nervous about. I know everything will be fine, but I can't help but worry about his breathing when he is sedated like that.
On a lighter note... Nate can't have anything to eat or drink after 3 am tonight until after the test at 9. So he should be alot of fun on the car ride up to Atlanta. Poor little guy will probably scream the entire way. I am ready for tomorrow to be over with already.
Scott and I are so lucky that Nate has come so far. He is such a happy baby and has brought so much joy into our lives. He sleeps on a schedule, eats when he is hungry, and plays all day long. Again, we are so blessed. We are one of the lucky families. So many children that were in the hospital with us have not has outcomes like ours. We were and are so fortunate to have had the support from our family and friends. I received a flyer in the mail the other day from the Ronald McDonald house where we stayed in Macon. They were there for us too. So if you ever have time or donations that you would like to share, support your local Ronald McDonald house. http://www.ronaldhousecga.org/support/index.html They were very good to us and so many other families during a terrifying time. I am sure they are struggling with the current economic conditions as well.
4 comments:
I just walked upstairs and added Nate to my bathroom shower prayer list (it's my main list, because that's the place I have the most time to pray).
I also left you a little present on my blog.
http://sixgoldencoins.blogspot.com/2008/11/award.html
I got your comment, and forwarded the photo of Jackson and Patrick to your parents, since I don't have your direct email.
Have a good night tonight, and stay strong for tomorrow!
Julia,
I still check in weekly to see how Nate is doing....so thanks for sharing his updates on your blog. I just stopped and said a prayer for Nate and your entire family as you face today's testing. May you, Scott, and Nate all feel God's grace and love today and always.
You guys continue to amaze me. You are all of course in the Rogers/Stephens' prayers today and always. Love you all.
Scott, Julia & Nate,
Still praying for your and your family; loved the pictures, and the newsy info you've posted. Though tests and doctors declare diagnoses, and offer prognoses, God is still in control - always has been, and always will be. May God touch Nate's hearing, and bring His special healing.
Blessings, Tommy
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