Today was a day of therapy. Nate's speech therapist came for the first time today. The speech therapist is actually the one that will help us work with Nate on his feedings. He was very impressed with the progress Nate has made since his initial evaluation of him. He felt that he was getting stronger and that time and Nate getting bigger and stronger will be the most beneficial to him. He also feels that the feeding tube in his nose could be contributing to his problems with aspiration, which is a catch 22 because he has the feeding tube because he aspirates. We have discussed putting his feeding tube directly into his stomach through a small a small hole in his belly. He is not a candidate for this yet since his spleen is still enlarged. The spleen is overlapping into the area where they would put a "g tube," which is a tube that goes through the belly. Time will tell.
We also had a great opportunity to talk with a physician that has a specialty with children with auditory neuropathy. She gave us alot of very valuable information and hope that Nate will have the opportunity to live a healthy and normal life. We are going to take things one day at a time and will we have a little bit better idea about his condition after we have the next hearing test in November.
3 comments:
Ugh, I just love this little man! He continues to amaze me, as does his parents!
Julia,
I am so glad you started up a blog. It really will help you document everything Nate is going through as well as meeting his milestones. He is just precious and you guys should be so proud.
You are doing a great job! I continue to keep you all in my prayers.
Jennifer Willson Mautz
I'm also glad you started a blog! It's much easier to keep track of Nate's progress. I recently started one too, and it is so cathartic to have a record of my kids and our family's life to look back on. One day, Nate will love reading about himself!
We're praying for you all!
Love,
Elizabeth
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